The Ohio family of a little girl who has up to 1,000 seizures a day has moved 1,200 miles to Colorado, hoping to get help in the form of medical marijuana treatment.
Three-year-old Addyson Benton, of Liberty Township, Ohio, was diagnosed with myoclonic epilepsy when she was nine months old. The condition has delayed her communication and motor-skill growth.
Though Addyson has tried at least ten anti-seizure drugs, nothing appears to have reduced her symptoms. (Scroll down for the video.)
1. Addyson Benton, of Liberty Township, Ohio, was diagnosed with myoclonic epilepsy when she was nine months old and has tried ten anti-seizure drugs with no result.
2. When Addyson (pictured here with her mom, Heather Benton) was diagnosed, she was having up to 1,000 seizures per day.
Addyson’s parents, Heather and Adam Benton, researched a kind of non-psychoactive medical marijuana which is illegal in Ohio, and decided that it’s in Addyson’s best interest to give it a try.
The Bentons already have two doctors in Colorado whom Addyson sees once a year and both of them told the family that THCa, the active component of cannabis, would be beneficial, The Cincinnati Enquirer reports.
The family initially planned to move in October 2014, but decided to remain in Ohio after being told that they were on a waiting list for cannabidiol oil which would be shipped to them from Colorado.
3. The three-year-old girl (pictured here with her father, Adam Benton) has had delayed communication and motor-skills growth because of her seizures.
4. Addyson’s parents researched a non-psychoactive form of medical marijuana that they believe will help their daughter. Her two doctors in Colorado, whom she sees once a year, also believe she will benefit from the drug (image: GoFundMe).
After the Bentons were told that the oil, called Charlotte’s Web CBD oil after seizures in a girl named Charlotte Fiji, would not be shipped to them until the October 2015, they decided to make the move.
The family had already tried the oil, which is typically taken orally through a syringe or an empty pill capsule, on Addyson before moving and said that they saw improvements in two weeks. Heather Benton told The Enquirer:
Her walking is better, her talking is better, her attention is better. It’s phenomenal the changes we have seen in her these two weeks, but it has not controlled her seizures. We really need to jump on top of that while she’s growing.
5. Addyson’s family is moving 1,200 miles from Liberty Township, Ohio, to Castle Rock, Colorado, in hopes of helping stop their daughter’s epilepsy.
6. Addyson was able to try the CBD oil two weeks before she left Ohio, and her family said they can already see improvements (image: GoFundMe).
Once the family moves to Colorado, Addyson’s treatments will cost about $300 per month.
The Bentons’ move to Castle Rock, Colorado, comes after two years of planning and Adam has managed to find a job in the state before leaving home.
Various organizations are trying to get the legalization of marijuana on the Ohio ballot for November, however the Bentons said they could not wait and that Addyson needs help now.
7. The family has been planning their move off-and-on for about two years. Once they reach their new home, Addyson’s treatments will cost about $300 per month.
8. Heather and Adam Benton’s goal is that the move will help them find doctors “who know what they are doing” and that Addyson’s seizures can be reduced.
Heather Benton said:
We need to get out to Colorado and come up with a plan and figure out what things are going to work for her. Once we figure that out, and Ohio’s bill passes we can look at getting her on the same medication and then we can come back.
Even if the bill passed tomorrow, if I went to my neurologist or our pediatrician, they wouldn’t have a clue what to tell us about dosing and what’s safe with her current medications.
We just want to be surrounded by people who know what they are doing.
The Benton family has set up a GoFundMe page to raise funds for Addyson’s treatment.
9. A family moves to Colorado for medical marijuana — an ABC 9 report.
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